NIH Blueprint: The Human Connectome Project

Important Notice to Recipients and System Administrators of HCP Connectome In A Box Hard Drives

Thank you for acquiring a Connectome-in-a-Box that contains HCP image data.  This provides an easy and efficient way to transfer large HCP datasets to other labs and institutions wanting to process lots of data, especially when multiple investigators are involved. With it comes a need to insure compliance with HCP’s Data Use Terms as well as any institutional requirements.

Before accessing the HCP Connectome-in-a-Box data, it is required that each investigator to register and agree to the Open Access Data Use Terms.  This may entail getting local IRB approval to use the data.  While this is the responsibility of each individual investigator, those involved in helping distribute the data by way of Connectome-in-a-Box have a responsibility to facilitate this process. 

1) Access to Connectome-in-a-Box data should be provided only to investigators who have agreed to the HCP Open Access Data Use Terms.  Appropriate recommended methods of access restriction include password protection, Unix security group controls, and physically securing the portable drive under lock and key.  HCP will provide a service via ConnectomeDB that allows local administrators to ascertain whether a particular individual has agreed to these terms.

Administrators who have an HCP account can use the following curl command to obtain a comma-separated list of groups a given user belongs to (once a valid email is entered in the string). 

curl  https://db.humanconnectome.org/data/services/verifyaccount?email=<email-address>

If a list is returned that contains “Phase2OpenUsers”, the individual has accepted the data use terms for access to HCP Phase II data. 

2) The message on the next page should be communicated to all individuals at your institution who express interest in using HCP data from Connectome-in-a-Box.

Sincerely,
David C. Van Essen (PI), for the WU-Minn HCP Consortium

May 1, 2013


IMPORTANT NOTICE to investigators wanting to use HCP datasets available on Connectome-in-a-Box hard drives.

HCP’s Connectome-in-a-Box provides imaging data from the Open Access dataset. Before using any of these data for research, you and all other investigators using the data are required to register and agree to the Open Access Data Use Terms. This includes agreeing to comply with institutional rules and regulations.  This may mean that you need your research to be approved or declared exempt by a committee that oversees research on human subjects (e.g., your IRB or Ethics Committee).  The released HCP data are not considered de-identified, insofar as certain combinations of HCP Restricted Data (available through a separate process) might allow identification of individuals.  Different committees operate under different national, state and local laws and may interpret regulations differently, so it is important to ask about this. If needed and upon request, the HCP will provide a certificate stating that you have accepted the HCP Open Access Data Use Terms.

Sincerely,
David C. Van Essen (PI), for the WU-Minn HCP Consortium

May 1, 2013